Helping You Help Yourself privacy notice

Who we are

One person in five in the UK is affected by lung disease. We are the only UK charity for people affected by all lung and respiratory disease – from mild asthma through to lung cancer. We are leading the fight against lung disease by providing support, funding vital research, and campaigning for better prevention, treatment and care.

With support from Big Lottery Wales we will be rolling out a new programme of exercise and self-management for people living with mild COPD. We hope to transform their lives for the better, at an earlier stage in their condition.


All material housed on this website and associated server(s) operated by the BLF agents operating on its behalf, unless otherwise acknowledged is copyright of the BLF.

This material, whether text, images, sound or other media forms, cannot be republished without permission. Permission is hereby granted for such material to be viewed, stored, or output as 'hard copy', for individual, non-commercial use only.

Where individual authors are credited, each asserts his or her moral right to be identified as the author of that material.

If you wish to link to any of the material on our website or server(s), incorporate any of our images in your own material, or use any of our images as links, then before doing so you must contact the named author (if given) or contact the BLF. Thank you.


The balloon logo and words British Lung Foundation are registered trademarks and cannot be used without the permission of the BLF.

Your information: what do we hold?

The BLF is committed to protecting your privacy. We will only use information collected lawfully in accordance with the Data Protection Act 1998. We undertake not to use any information we may hold about you for any purpose other than that for which it was collected, unless we have obtained your consent. This includes not sending the information overseas without permission. We do not sell personal information.

Our records may be electronic, paper or a mixture of both, and we may use a combination of working practices and technology to ensure that your information is kept confidential and secure.

What kind of information do we hold?

In order to deliver our Helping You Help Yourself project, we need to collect and use personal information to understand whether the 7 week programme has made a positive difference to your condition. Patient consent will be sought whether this is implied or explicit.   

We will collect some personal information from you at the start of the programme. You will be asked to provide your contact details including telephone number, age, and gender.  This information will enable us to contact you. 

We will also ask you to provide us with some personal history, background and understanding of your condition.  We will ask you about your lung condition and how it affects you and your recent interactions with health care.  We will ask you the same questions about your lung condition at the end of the programme and when we contact you after the programme. This will help us assess any benefits your involvement with the programme has had.

We will retain this information on a secure database on our servers, whilst paper records will be kept in a secure filing cabinet for up-to 3 years before being destroyed.

Information Sharing

Unless given consent, we will not share your personal information. The information we collect during our 3-year project will be used to show average changes in all of the outcome measures we are collecting, and you will remain anonymous.

We will ask your consent to allow us to contact your GP to inform them how you progressed on the programme.

We are working closely with the National Exercise Referral Scheme and we would like participants to continue to exercise with them after the 7 weeks. If this is the case, will ask your consent to share the forms you have completed with them, so they can monitor your progress.

We will store your data for the 3 year duration of the project.  At the end of the project we will delete your details but retain anonymised results for our records. We would like to record that you took part in this program and we’d also like to stay in touch but we won’t do this without your consent.

When we collect your personal information we use strict procedures and security features to prevent unauthorised access. However, while we try to protect your personal information, BLF cannot guarantee the security of any information you transmit to us and you do so at your own risk.

Your information: What do we need from you?

Please tell us as soon as possible if there are any changes, such as a new address. This helps us to keep your information reliable and up to date. At any time you may withdraw your consent for BLF to use your data in the ways specified in the consent form. To do this please write to us at the address or email below.

Contacting us about your information

If you have any questions or concerns regarding the information we hold on you or the use of your information, would like to opt out of having your information used by us or would like to know more about accessing your information: please contact us at:

British Lung Foundation
One Caspian Point
Pierhead Street
CF10 4DQ

Telephone: 03000 030 555
Email: [email protected] 

For independent advice about data protection, privacy and data sharing issues, you can contact the

Information Commissioner’s Office – Wales
2nd Floor, Churchill House
Churchill Way
CF10 2HH

Telephone: 029 2067 8400
Fax: 029 2067 8399
Email: [email protected]

Or visit their website for more details