A map for better care

Over the past year, we've been looking into ways to improve access to care for people with interstitial lung disease (ILD). 

Our report, A map for better care: making effective care pathways for people with interstitial lung disease, finds that many people living with idiopathic pulmonary fibrosis (IPF) still aren’t getting the diagnosis, support or care they need. 

A map for better care: making effective care pathways for people with interstitial lung disease September 2017

Idiopathic pulmonary fibrosis (IPF) is currently an incurable lung condition with no known cause. The average life expectancy in the UK after diagnosis is 3 years.

Yet access to services, treatment and support for patients with IPF is fragmented. This urgently needs to change. We need to make health systems work for everyone living with IPF.

Patients can’t afford to waste the precious time they have left going from service to service for help. They need speedy, seamless access to the care they need, when they need it.

We recommend the following actions: 

  1. Establish taskforces for lung health in England and Scotland
  2. Create local ILD networks across the UK
  3. Develop ILD pathways
  4. Improve access to personalised treatments, diagnosis and support
  5. Evaluate and improve existing ILD services

The report looks at all ILDs, but mainly focusses on IPF as it's the most common type of ILD.

Download the full report (PDF, 4.5MB)