Mesothelioma research network terms of membership
Please read the below terms of membership for the mesothelioma research network (MRN).
The aims of the MRN
- Bring researchers working in mesothelioma together to meet one another.
- Help researchers share knowledge, skills and resources between them.
- Help researchers and healthcare professionals to be in touch with what mesothelioma research is happening in the UK and globally.
- Help avoid unnecessary duplication of research effort.
- Encourage research investment in mesothelioma.
- Attract and retain the interest of researchers in this field.
- Encourage collaboration, particularly in terms of applications to major funding bodies.
- Encourage an ongoing conversation about mesothelioma research priorities to inform the strategies of the BLF and other funders.
- Promote the MesobanK, a source of samples from patients, to researchers.
The MRN will provide opportunities for increased connection with other researchers and research support organisations, face-to-face networking and a chance to learn about new research at an annual research day, as well as a chance to access BLF funding (exclusive to researchers and healthcare professionals in the MRN).
The administration and logistics support for the MRN will be provided by the BLF. If you have questions, comments or complaints, please contact Cheryl Lenny, the MRN manager, on 0207 688 5822 or email to firstname.lastname@example.org.
- As a researcher or clinician you join as an individual member and not on behalf of the institution you work in.
Improve outcomes for people affected by mesothelioma by bringing together researchers, driving research progress and improving the quality of research carried out in the UK.
By joining the MRN you agree:
- To receive communications about the MRN from the BLF via email and phone (excluding but not limited to: the MRN e-newsletter, the MRN members list, surveys on the MRN from the BLF and notices about the MRN annual research day).
- That BLF may contact you about other research-related activity outside of the MRN but considered to be relevant to you as a researcher, such as funding calls, scientific/medical conferences or related initiatives.
- That the BLF and other MRN members may contact you, initially by email, about the information you have shared within the MRN.
- Upon joining the MRN, if applicable, to send information on your research priorities, skills, knowledge and resources to potentially share in the MRN ‘members list’.
- Information provided in the ‘members list’ may be shared with the BLF and MRN members (research support organisations or individuals).
- You will only share information you feel comfortable for the BLF and other MRN members to have access to.
- Not to disclose, outside the MRN, information you have received from within it unless you have the permission of the person who provided the information and the BLF.
- Information that is potentially commercially sensitive should not be discussed in the MRN or communicated through MRN channels.
- To respond to requests from the BLF to update your information in a timely manner.
- To notify the BLF if your contact information, role or institute changes.
- To notify the BLF if you move from the NHS (or equivalent) or an academic institution to a commercial organisation.
- To notify the BLF if there is a change in funding for your role from non-commercial to commercial sources.
Values and behaviours
- Embody the values of the MRN by acting in an open, fair and transparent manner.
Termination of membership
- You have the right to terminate your membership at any point by writing to the MRN manager via email@example.com.
- The BLF reserves the right to terminate your membership if, after consultation with the Trustees, it believes there is a reputational risk to the Foundation of your continuing membership of the MRN.
How the BLF will manage your data
We agree to:
- Keep your information for up to one year after you leave the Network. After which it will be deleted.
- Make every effort to keep your data up-to-date by asking you to check what we hold periodically, but we also rely on you notifying us of any major changes (for example, changes to your contact details or if you change roles).
The data we hold on you in relation to the MRN can be seen by you at any time.