Role Profile: Patient Voice Representative

We are excited to announce that, along with the Stroke Association (SA) and British Heart Foundation (BHF), we are looking for 6 Patient Voice Representatives.

Patient Voice Representative organisations involved

You'll help drive improvement in how the NHS prevents, detects and treats heart, circulatory and respiratory conditions. 

This is a very exciting opportunity and different to those that have been offered before. It will be a chance to influence decision makers by using your voice and sharing your patient/carer experiences.

Closing date for applications: 20 August


Background Information

In January 2019, NHS England announced the Long Term Plan. We are delighted that stroke, cardiac and respiratory conditions have been named as new national priorities.

To help deliver the plan, NHS England have created 3 delivery boards, 1 for each condition. These will give advice and feedback on the way the plan is implemented. These boards feed into a Cardiovascular Disease (CVD) Respiratory Programme Board. This then reports to the Board of NHS England and NHS Improvement.  

We will be co-chairing our respective condition-specific delivery boards alongside the SA and BHF. In addition, all three groups are represented on the CVD Respiratory Programme Board alongside NHS England, with the aim of transforming services for people that need them.

Role Summary

We are recruiting 2 people who have experience of living with/caring for someone affected by a lung condition to be Patient Voice Representative on the Respiratory Delivery board.

As a Patient Voice Representative, you will help to ensure that plans to improve care are focussed on what matters most to patients and carers.

1 of the people recruited will also be the Patient Voice Representative on the programme board.

You can apply to be on the delivery board only, or you can apply to be on both the delivery and programme boards.


On the Delivery Boards you will be asked to:

  • Attend quarterly meetings to represent the voice of people affected by lung conditions
  • Participate in teleconferences and email conversations
  • Review improvement plans in respiratory care
  • Prepare for meetings by reading papers
  • Work with us to collate views from others
  • Work with us to decide how we can involve other people in meetings and projects

On the CVD Respiratory Programme Board, you will be asked to:

  • Attend quarterly meetings to represent the voice of people affected by lung conditions
  • Update Programme Board on Delivery Board meetings
  • Participate in teleconferences and email conversations
  • Review improvement plans in respiratory care
  • Prepare for meetings by reading papers
  • Work with delivery board members to collate views from others who have been affected
  • Work with delivery boards to decide how we can involve other people in meetings and projects

We are looking for people who:

  • Have experience of lung conditions; this could be personal experience or through supporting a family member/friend
  • Are able to represent the wider view of patients and carers
  • Have experience of working with senior leaders and/or at a strategic level
  • Are interested in improving health care
  • Can read and absorb complex information (with support if needed)
  • Can confidently participate in group discussions, and listen to and respect differing opinions
  • Work in a way that aligns with the Nolan Principles, equality and diversity
  • Are based in England and can travel to London

The benefits for you:

  • Working on national improvements to care that matter to people
  • Finding out more about how improvements in care are made
  • Developing your communication and planning skills
  • Out of pocket expenses will be reimbursed and will be eligible for an NHS Involvement Payment – please see the PPV Partners Expenses and Involvement Payment Policy for more information.

Support and training for you:

  • Full day induction before the first Board meetings: 26 September
  • Ongoing peer support from other representatives
  • Named contact at BLF who will accompany you at Board meetings
  • ‘Buddy’ on the board
  • Access to NHS England’s learning and development opportunities for Patient Voice Partners
  • Carers are also welcome to attend meetings to support you

If you have any questions about the role, please get in touch

Apply to be a Patient voice representative

Closing date for applications: 20 August