Help us identify research priorities for COPD flare-ups
If you are someone who lives with COPD, a member of their family or their carer can you spare 10 minutes? We’re also looking for the views of health care professionals who work with people with COPD.
Can you help direct research into flare-ups of COPD?
To help us identify research priorities for COPD flare-ups (also known as exacerbations), we want to know about your personal experiences to find unanswered questions. They could be about your diagnosis, treatment or any aspect of your care. We want to know things that are important to you, but to which you haven’t been able to find answers.
Why this national survey?
We want to identify and prioritise unanswered questions about flare-ups of COPD. We want to make sure that research funders know what really matters to people affected by COPD and their health care professionals. This knowledge will encourage researchers to look at the things that could help improve the care of people living with the disease.
This survey is a first step in that process.
Who is running the survey?
The BLF has funded a COPD exacerbation priority setting partnership. The partnership is part of a research study led by Professor John Hurst, Professor of Respiratory Medicine at University College London.
If you have any questions about the survey, please email Jaber Alqahtani, the study coordinator, at firstname.lastname@example.org.
What will happen to my survey answers?
The research team will review the responses and turn them into questions. They will check if existing research has answered them.
Questions not answered by existing research will be published and will be prioritised in a consultative process.
The result will be a top 10 list of research topics, which the COPD exacerbation priority setting partnership will use to influence future research decisions. We will publish our results on this website in early 2020.
What will happen to my data?
All data collected in this survey will be held anonymously and securely. No personal data is requested as part of the survey responses. The data in this survey will be owned by University College London and will not be passed to a third party. It will be deleted at the end of the study. For more information, read UCL’s data protection policy.
You will have the option to give your details to the research team if you want to take part in the next phase of the study, or you want to know the survey results.
Download the survey in a printed format
Health care professionals can download a copy of the survey to print off so that their COPD patients can fill it in. They must then submit their patient's answers using the online survey.