Your IPF stories and videos
Stories written by people like you, talking about their experiences of idiopathic pulmonary fibrosis (IPF).
Read and watch the stories of people who live with and have experienced IPF. Each story discusses an aspect of living with IPF, from diagnosis to keeping active and managing breathlessness.
Your stories about IPF
We’re working on an urgently needed treatment for IPF
Professor Robin McAnulty is working on a research project that seeks to find a potential treatment for pulmonary fibrosis.
Losing my mum to IPF
After Stephen’s mum died from IPF, he knew he wanted to do something big to honour her memory.
A stranger saved my life
Andy was diagnosed with idiopathic pulmonary fibrosis (IPF). After 12 years of treatment, he got a lung transplant that saved his life.
How we remembered my father on our wedding day
Matt and Kat came up with a special way to commemorate his father, who died from IPF, at their wedding reception.
Staying positive with IPF
Josie’s dad passed away from idiopathic pulmonary fibrosis (IPF) in March. She tells us how keeping active helped him to stay positive and how the BLF helped her understand his condition better.
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Your videos about IPF
I adapt and stay positive
John has idiopathic pulmonary fibrosis (IPF). He shares how he's learned to adapt and stay positive.
My IPF and breathlessness
Ann has IPF. She shares how breathlessness has affected her life and how she’s learnt to adapt.
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Tell your story
Do you have a story to tell? It could be about your lung condition, a friend or relative you know who lives with one, or how caring for them impacts your life. We'd love to hear what you've got to say.