Your pulmonary fibrosis stories

Stories written by people like you, about pulmonary fibrosis.

Read the stories of people who live with and have experienced pulmonary fibrosis, including IPF (idiopathic pulmonary fibrosis).

Your stories about pulmonary fibrosis

I adapt and stay positive

John has idiopathic pulmonary fibrosis (IPF). He shares how he's learned to adapt and stay positive.

Ann sat on a small beach by the sea. She is wearing a nasal cannula to help her breath.

My IPF and breathlessness

Ann has IPF. She shares how breathlessness has affected her life and how she’s learnt to adapt.

My dad’s battle with idiopathic pulmonary fibrosis

Kellie shares the story of her dad and how she's determined to never stop running for him.

With my diagnosis, I can make changes to my lifestyle

Lorri wants everyone to be an advocate for their own health to get a diagnosis as early as they can.

Running the London Marathon to give people "new lungs"

Jo's dad died from lung disease. Now she's running the London Marathon to help raise awareness

Why I'm still making my mind up about oxygen

John is considering oxygen therapy for his IPF.

Oxygen changed my life, but it was hard to get used to

Diz is glad she started using oxygen therapy.

IPF won't stop me from Taking Steps

Ron, who has idiopathic pulmonary fibrosis (IPF), tells us why he's taking steps to fight lung disease this June

Our life with IPF

Maxine is a wife and a carer. She's making as many memories as she can before it's too late.

Tell your story

Do you have a story to tell? It could be about your lung condition, a friend or relative you know who lives with one, or how caring for them impacts your life. We'd love to hear what you've got to say.

Tell your story of pulmonary fibrosis

You are here