Your pulmonary fibrosis stories
Stories written by people like you, about pulmonary fibrosis.
Read the stories of people who live with and have experienced pulmonary fibrosis, including IPF (idiopathic pulmonary fibrosis).
Your stories about pulmonary fibrosis
Having a long-term lung condition doesn’t change who you are, but you have to learn to adapt
Tricia was diagnosed with hypersensitivity pneumonitis 7 ½ years ago. She shares what it’s like living with a long-term lung condition and how she’s had to make adjustments to her life.
I’m taking each day as it comes
Andy has a rare type of pulmonary fibrosis. At the start of the year, as the coronavirus crisis began, he was in hospital with a pneumothorax. He shares how he’s coped with lockdown and how he plans to approach the next few months, as many return to a relatively normal life.
I adapt and stay positive
John has idiopathic pulmonary fibrosis (IPF). He shares how he's learned to adapt and stay positive.
My IPF and breathlessness
Ann has IPF. She shares how breathlessness has affected her life and how she’s learnt to adapt.
My dad’s battle with idiopathic pulmonary fibrosis
Kellie shares the story of her dad and how she's determined to never stop running for him.
With my diagnosis, I can make changes to my lifestyle
Lorri wants everyone to be an advocate for their own health to get a diagnosis as early as they can.
Running the London Marathon to give people "new lungs"
Jo's dad died from lung disease. Now she's running the London Marathon to help raise awareness
Tell your story
Do you have a story to tell? It could be about your lung condition, a friend or relative you know who lives with one, or how caring for them impacts your life. We'd love to hear what you've got to say.