Your pulmonary fibrosis stories

Stories written by people like you, about pulmonary fibrosis.

Read the stories of people who live with and have experienced pulmonary fibrosis, including IPF (idiopathic pulmonary fibrosis).

Your stories about pulmonary fibrosis

Tricia, who lives with hypersensitivity pneumonitis

Having a long-term lung condition doesn’t change who you are, but you have to learn to adapt

Tricia was diagnosed with hypersensitivity pneumonitis 7 ½ years ago. She shares what it’s like living with a long-term lung condition and how she’s had to make adjustments to her life.

I’m taking each day as it comes

Andy has a rare type of pulmonary fibrosis. At the start of the year, as the coronavirus crisis began, he was in hospital with a pneumothorax. He shares how he’s coped with lockdown and how he plans to approach the next few months, as many return to a relatively normal life.

I adapt and stay positive

John has idiopathic pulmonary fibrosis (IPF). He shares how he's learned to adapt and stay positive.

Ann sat on a small beach by the sea. She is wearing a nasal cannula to help her breath.

My IPF and breathlessness

Ann has IPF. She shares how breathlessness has affected her life and how she’s learnt to adapt.

My dad’s battle with idiopathic pulmonary fibrosis

Kellie shares the story of her dad and how she's determined to never stop running for him.

With my diagnosis, I can make changes to my lifestyle

Lorri wants everyone to be an advocate for their own health to get a diagnosis as early as they can.

Running the London Marathon to give people "new lungs"

Jo's dad died from lung disease. Now she's running the London Marathon to help raise awareness

Why I'm still making my mind up about oxygen

John is considering oxygen therapy for his IPF.

Oxygen changed my life, but it was hard to get used to

Diz is glad she started using oxygen therapy.

Tell your story

Do you have a story to tell? It could be about your lung condition, a friend or relative you know who lives with one, or how caring for them impacts your life. We'd love to hear what you've got to say.

Tell your story of pulmonary fibrosis

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