When your child is diagnosed with a lung condition

As your child grows with a lung condition

There will be different things to think about at each stage of your child’s life. Here are some tips and things to think about as your child grows:

  • When your child is a baby and toddler they will probably be spending more time at home than anywhere else. Make sure your home is lung and breathing friendly.
     
  • Keep your child at home if they have an infection.
     
  • If your child goes to nursery, a childminder or any other childcare, make sure the staff know about your child’s condition and what to do if they become unwell. Give them a photocopy of your child’s written management plan.  Make sure they know when they should call 999.
     
  • Your child will need to extra support as they prepare to start school. Your health care professionals and childcare provider can help you make a plan. Some nurses may offer to talk to your child’s school and answer any questions they have.
     
  • Tell your child’s school about their condition. Make sure they are familiar with your child’s treatment needs and routines and know what to do if your child becomes unwell.
     
  • If your child has a plan, such as a personal asthma action plan, share it with the school.  The school should also have an asthma policy in place.
     
  • Ask school staff to be aware of when when they should call 999.
     
  • Tell the school about appointments your child needs to attend as a result of their condition.  They will usually need evidence such as a copy of the appointment letter. Absence for medical reasons should not affect your child’s overall attendance figures.
     
  • Your child might be happy to tell their friends about their condition, or they might not want anyone to know.  Talk to your child and decide together what to do.
     
  • If you are becoming worried about your child’s progress and education ask to speak to the school special educational needs co-ordinator.
     
  • As your child gets older, encourage them to take more responsibility for their medication.
     
  • Your teenager may worry about side effects, feel their medication isn’t needed if they don’t have symptoms or dislike taking medication in front of others.
     
  • Adult health services will take over when your child is 18. Planning for the move to adult services should start early to make sure your child is prepared - sometimes from the age of 11. They may spend time with health care professionals on their own and have joint reviews with children and adult services. Talk to your health care professionals about when this support should start.

Last medically reviewed: September 2016. Due for review: September 2019

This information uses the best available medical evidence and was produced with the support of people living with lung conditions. Find out how we produce our information. If you’d like to see our references get in touch.