Blog

Updates from the Taskforce

I was not told that I had been diagnosed with COPD for nearly two years

Eddie, 60, a retired chief technologist, is living with chronic obstructive pulmonary disease (COPD) and bronchiectasis. Here he shares his diagnosis journey, and how not being properly informed that he was diagnosed with COPD meant he went without any treatment or support for nearly two years.

Living with a lung condition taught me to pace myself

Pauline, 72, a former mental health nurse from Churchdown, has lived with asthma and chronic obstructive pulmonary disease (COPD) for 18 years. She describes how she was diagnosed and how pulmonary rehabilitation has helped her.

I thought a spacer was for children – it can be easy to get the wrong idea when managing your asthma

Lauren, 30, was diagnosed with asthma while studying at university in her twenties. She shares her diagnosis story and how she realised the importance of inhaler technique for managing her asthma.

Getting patients on the right treatments can be life changing

Sheila, 50, lives in Stockport and works as a general practice nurse specialising in respiratory care in Manchester. She shares her insights into her working day and the importance of inhaler technique and prevention.

In memory of Caroline Dillon

Caroline was a Storyteller for the Taskforce for Lung Health in 2020, and worked with Taskforce member, Action for Pulmonary Fibrosis, to help support others living with the condition. Caroline also shared her story to help change attitudes towards people with lung disease.

We were never told that pulmonary fibrosis is terminal

Sarah is 39, and living with asthma. Sadly, in 2013, her dad passed away from idiopathic pulmonary fibrosis (IPF).

I thought I would lose my love of exercise but pulmonary rehabilitation helped me rediscover the joy of keeping fit

Ron, 59, lives in Lincoln and has idiopathic pulmonary fibrosis (IPF). He shares how pulmonary rehabilitation has helped him.

Respiratory data in the time of COVID-19: Things that took years before now take weeks.

By Professor Jennifer Quint, Deputy Director, BREATHE – The Health Data Research Hub for Respiratory Health

I don’t go near anyone, so it’s almost like staying at home

Kimberlee, 64, has bronchiectasis and has told us about how the pandemic has impacted on her mental health.