I care about IPF Week - what we did this year

Melanie reflects on this year's IPF Week success.

Last week (5 October - 11 October) was IPF Week - and we've been raising awareness and vital funds to help people affected by a condition that's on the rise.

People with IPF (which stands for idiopathic pulmonary fibrosis) have lungs that become thicker and harder due to scarring. This makes it harder to breathe over time, and, sadly, about half of people will live for less than 3 years after they find out they have IPF.

Here's just some of the things we did to raise awareness during IPF Week this year.

#ICareAboutIPF

This year, we asked you to show how you care about IPF - and we were overwhelmed by your response! Here are some of the photos you sent us.

Celebrity support

West Ham United FC and their mascot Bubbles the Bear took time out from the Premier League to talk to their supporters about IPF.

Hammers fan Ray Winstone wrote about IPF in the matchday programme, saying "This isn't about club rivalry, it's about raising funds and awareness of a disease that kills 5,000 people in the UK every year, but that most people have never heard of."

TV and stage actor David Oakes also spoke out about IPF, urging his fans to show their support.

Sharing your stories

We shared the stories of people affected by IPF on our website.

The BBC reported on the lack of funding for IPF, Ann spoke to her local paper about why she's campaigning, and we made sure IPF was discussed in newspapers, websites and on the radio throughout the country. Here you can listen to Ashley from the BLF speaking on BBC Radio Solent.

Politicians and health care professionals talked about IPF

We held a special event at the National Assembly for Wales to launch our report calling on the Welsh government to fund more research, make more information about IPF available, and support specialist nurses.

And we hosted a Twitter chat for health care professionals to discuss IPF and how to support people living with it.

Taking on fundraising challenges

Loads of you made amazingly generous donations during IPF Week, which will fund even more research and increase support for people affected by IPF. Many people joined Team Breathe to run the Royal Parks Foundation Half Marathon in aid of IPF.

The incredible Matt Green has taken on 10 challenges in memory of his dad, who died of IPF. He's completed runs and swims, and finished by cycling from Land's End to John O'Groats.

This is what we do

We make a big song and dance during IPF Week, but the reality is we're working hard for people affected by IPF every single week.

We're supporting people with free information, events and our helpline. We're raising awareness and campaigning for governments and health care services to provide the best possible care. And our research is looking for new treatments and help people with IPF live longer.

We’re making great progress, but there’s still a long way to go. We will never give up.

IPF Week might be over, but you can still make a difference by donating online today, or text IPF to 70500 to donate £5 instantly.


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19 October 2015