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Mesothelioma

Taking care of your feelings and available support

In this section, we cover the importance of looking after yourself when you’ve been diagnosed with mesothelioma and the support that’s available to you.

In this section:

Taking care of your feelings

Being diagnosed with mesothelioma can be frightening and it’s normal to feel overwhelmed. You might feel shock, fear, disbelief, anger, loneliness or resentment. You might feel a mix of these emotions. Sometimes it can be hard to accept that you have cancer and you might feel like you just want to be left alone.

It’s also a difficult time for your friends and family, who might be experiencing many of the same emotions.

When you’re ready, it’s important to talk about your feelings. You may find it helpful to talk to friends and family. You can also talk with your cancer nurse specialist. If you need more support, your cancer nurse specialist can help you find a counsellor or psychologist. Some GP practices have a counsellor as part of their team. 

I get immense support from my family, friends and old colleagues. My consultant is fantastic, and I have a close relationship with my mesothelioma nurse, who is always there to comfort and support me. I also get a lot of love from the support group I attend. We normally meet monthly, where we have guest speakers covering issues relevant to our condition. We also have outings and other speakers about topics of interest away from mesothelioma.Sandra

Read Sandra’s experience of living with mesothelioma

Support and other organisations that can help

General advice and support

BLF Helpline

Our helpline team of respiratory nurse specialists are there to answer your questions. They can also help you find a local mesothelioma or asbestos support group. Call them on 03000 030 555. Lines are open 9am to 5pm, Monday to Friday.

Mesothelioma UK

Mesothelioma UK has a helpline, information about mesothelioma and can help you find a support group or specialist solicitor. Mesothelioma UK have also launched a project aiming to provide support for armed forces and veterans affected by mesothelioma.

Helpline: 0800 169 2409

Asbestos Victims Support Groups Forum UK

The forum represents asbestos victims support groups and provides advice on benefits and compensation for those with mesothelioma and their families.

Asbestos Awareness and Support Cymru

AASC gives support to people with asbestos-related disease in Wales. It has a network of support groups and works to raise awareness.

Helpline: 01495 272479

Action on Asbestos

Action on Asbestos campaigns for people with asbestos-related disease in Scotland. It advises on welfare rights and has a network of support groups. They can also help you find a specialist solicitor in Scotland.

0141 552 8852 or freephone 0800 089 1717

Mick Knighton Mesothelioma Research Fund (MKMRF)

The MKMRF is now part of the BLF. It aims to raise awareness and fund crucial research projects into mesothelioma.

Support for carers

Support is available for carers as well. Take a look at these organisations:

Carers Direct - 0300 123 1053

Carers Direct is the NHS resource for carers. It has an online guide to care and support and a helpline.

England

Carers Trust 

Carers UK - 0808 808 7777

Wales

Carers Trust

Carers Wales - 0808 808 7777

Scotland

Care Information Scotland - 0800 011 3200 

Carers Trust

Carers Scotland - 0808 808 7777

Northern Ireland  

Carers Trust

Carers NI - 028 9043 9843

Download our mesothelioma information (PDF, 166KB)

We use your comments to improve our information. We cannot reply to comments left on this form. If you have health concerns or need clinical advice, call our helpline on 03000 030 555 between 9am and 5pm on a weekday or email them.