Support for IPF

If you have idiopathic pulmonary fibrosis (IPF), there’s a lot you can do to look after yourself by leading a healthy lifestyle.

Feeling very tired is common and health problems that used to be minor can become serious.

Follow these tips to help keep your strength up, reduce your risk of complications and help you feel better generally:

• Have a flu jab each year.
   
• Avoid being around people with chest infections and colds.
   
• Ask your nurse for a pneumococcal vaccination to protect against pneumonia and many other infections.
   
• Stay as fit as you can. It’s recommended we exercise 150 minutes each week.
   
• Eat a healthy, balanced diet. It’s a good idea to ask to be referred to a dietician, who can give you tailor-made advice.

Remember to look after your mental health too. When you have a serious condition like IPF, it’s common to have emotional struggles. Your doctor or nurse will understand if you are feeling low, and they can help.

It’s important to keep enjoying life and we can help with practical advice on staying active. We can also put you in touch with your local support group. Our friendly helpline team are here to help you. 

Pulmonary fibrosis support groups

Being diagnosed and living with a lung condition can be challenging. Our support groups can help you to make new friends who know what you're going through, and get lots of information about pulmonary fibrosis.

Find your nearest pulmonary fibrosis support group >

IPF support service

We have a new free service for people living with IPF, their family and carers. Our IPF support service runs for 6 months where you'll talk with our IPF specialist advisor about topics important to you.