Idiopathic pulmonary fibrosis (IPF)

Support for IPF

There is a range of support available to you, including our pulmonary fibrosis support groups and helpline support.

We’re currently reviewing our specialist support for people affected by IPF. Our helpline continues to offer support for you and your family.

Pulmonary fibrosis support groups

Being diagnosed and living with a lung condition can be challenging. Our support groups can help you to make new friends who know what you're going through, and get lots of information about pulmonary fibrosis.

Find out more about our Pulmonary fibrosis support groups

Looking after yourself

If you have idiopathic pulmonary fibrosis (IPF), there’s a lot you can do to look after yourself by leading a healthy lifestyle.

Why not have a look at our tips about looking after yourself

Our helpline

You can always call our helpline on 03000 030 555 to find out more about IPF, ask about medication or simply to talk to someone. We can help you plan for clinic appointments and follow up with you after these if you are unclear about any aspects of your care.

Find out how our helpline can help you

Pulmonary fibrosis patient passport

The pulmonary fibrosis patient passport can help you to find out whether you're receiving the care you're entitled to, and what to do if not.

Order your free passport here

We use your comments to improve our information. We cannot reply to comments left on this form. If you have health concerns or need clinical advice, call our helpline on 03000 030 555 between 9am and 5pm on a weekday or email them.

Download this information (PDF, 289KB) Order your IPF information >

Last medically reviewed: August 2019. Due for review: August 2022

This information uses the best available medical evidence and was produced with the support of people living with lung conditions. Find out how we produce our information. If you’d like to see our references get in touch.