Sarcoidosis

What is the outlook for those with sarcoidosis?

Sarcoidosis affects people in very different ways:

  • acute sarcoidosis can last for just a few weeks or months.
  • chronic (or long-term) sarcoidosis can last for years, but might not get any worse.

Sometimes, you might get flare-ups of your symptoms and need treatment. A flare-up is when your symptoms suddenly get worse.

Sarcoidosis can affect many parts of the body and research has shown it’s possible for it to develop in places not previously affected. But usually, if sarcoidosis does flare up, it will be in the area of your body where it first started, with the same symptoms.

How can sarcoidosis affect you over time?

Over time, sarcoidosis can cause scarring and damage in the affected parts of your body. In the lungs, this will make you will feel more and more out of breath. If diagnosed early, it may be possible to treat sarcoidosis to minimise damage or scarring.

Most people who have long-term sarcoidosis eventually improve and can have an active life.  But in some cases, when long-term sarcoidosis gets worse over months or years, there can be permanent damage to the affected parts of the body. People with sarcoidosis that affects the heart or lungs can die from sarcoidosis, but this is rare.


Further information and support

You can call our helpline on 03000 030 555, where our friendly staff will be happy to talk to you about your concerns and answer your questions.

SarcoidosisUK has more information about sarcoidosis. Visit the SarcoidosisUK website or call 020 3389 7221.

If you have concerns or need advice, call our helpline on 03000 030 555 between 9am and 5pm on a weekday or email them.

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Last medically reviewed: January 2020. Due for review: January 2023

This information uses the best available medical evidence and was produced with the support of people living with lung conditions. Find out how we produce our information. If you’d like to see our references get in touch.